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Cancers Review

March 2018, Volume 4, 1, pp 1-7

Domiciliary Care Providers Views on Provision of Palliative Care for their Cancer Patients

Meegoda MKDL

,

Fernando DMS

,

Sivayogan S

,

Atulomah, NOS

,

Marasinghe, RB

Meegoda MKDL 1

Fernando DMS 2
Sivayogan S 3
Atulomah, NOS 4
Marasinghe, RB 5

  1. Department of Allied Health, Faculty of Medical Sciences, University of Sri Jayewardenepura, Sri Lanka 1

  2. Department of Physiology, Faculty of Medical Sciences, University of Sri Jayewardenepura, Sri Lanka 2

  3. Department of Community Medicine, Faculty of Medical Sciences, University of Sri Jayewardenepura, Sri Lanka 3

  4. Department of Public Health, Babcock University, Ogun State, Nigeria 4

  5. Department of Medical Education, Faculty of Medical Sciences, University of Sri Jayewardenepura, Sri Lanka 5

Pages: 1-7

DOI: Palliative care, Cancer, Domiciliary care provide.

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Article History:

Received: 03 January, 2018
Revised: 30 March, 2018
Accepted: 02 April, 2018
Published: 04 April, 2018


Abstract:

A qualitative study was conducted to describe views and life experiences of domiciliary care providers in meeting the palliative care needs of adult cancer patients at the National Cancer Institute, Maharagama, Sri Lanka. The target population for this study was Domiciliary Care Providers (DCPs) who were the family care givers of patients at National Institute of Cancer, Maharagam (NICM), Cancer Home (CH), Maharagama, Shantha Sevana Hospice (SSH) and Ceylinco Oncology Unit (COU), Colombo, Sri-Lanka. Purposive sampling technique was used to select participants for the study. In-depth interviews were conducted using validated semi-structured interviewer guide. Data saturation was reached after 15 in-depth interviews with DCPs. Trustworthiness of the study was maintained. Phenomenological-hermeneutic approach was followed to analyze qualitative data and thematic analysis was performed. Data analysis was done concurrently with data gathering. Being reassured, having more expectations, need psychosocial help and inadequate knowledge were the key themes identified. They expect knowledge improvement to provide better care. As patients’ level of satisfaction on domiciliary care provided by DCPs was high, improving their knowledge on palliative care may be a cost effective method of improving palliative care.
Contribution/ Originality
This study makes the distinct contribution to existing body of knowledge on the effectiveness of an educational intervention on cancer palliative care for nurses. This study uses new estimation methodology of implementing a user friendly intervention delivered through hybrid delivery. This study originates new formula in palliative care nursing. It used printed material on cancer palliative care, supplemented with face to face interactive sessions, DVD, telephone and online communications. This study is one of very few studies which have investigated improvement of nurses’ skills in cancer palliative care using quasi experimental design. The paper's primary contribution is finding that nurses skills improved significantly from the baseline to outcome evaluation and compared to the control group there was a 7.9 fold increase in the skills of nurses following the intervention. This study documents the effectiveness of an educational intervention on cancer palliative care delivered through a hybrid model.

Keywords:

Palliative care, Cancer, Domiciliary care provide.

Reference:

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[3]          Woruld Health Organization, Cancer control knowledge into action: WHO Library Cataloguing in Publication Data, 2007.

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[14]        P. Kulkarni, P. Kulkarni, R. Ghooi, M. Bhatwadekar, N. Thatte, and V. Anavkar, "Stress among care givers: The impact of nursing a relative with cancer," Indian Journal of Palliative Care, vol. 20, pp. 31-39, 2014.View at Google Scholar | View at Publisher

[15]        S. C. Reinhard, B. Given, N. H. Petlick, and A. Bemis, "Supporting family caregivers in providing care. Patient safety and quality: An evidence-based handbook for nurses," presented at the National Center for Biotechnology Information, U.S. National Library of Medicine, 2008.

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Funding:

Funded by University of Sri Jayewardenepura (ASP/06/Re/2009/09 0f 10/12/2008).

Competing Interests:

The authors declare that they have no competing interests.

Acknowledgement:

All authors contributed equally to the conception and design of the study.

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